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SpeakUP monitors, catalogs and analyzes the problem experienced by people with HIV in the ACA health care system.

Report an issue
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About Us

SpeakUP is a web-based information hub that identifies health equity issues facing people living with HIV, advocates, and providers across the nation that are related to the Affordable Care Act, and seeks resolutions on a personal scale and beyond through education, advocacy and policy change.

We will identify issues that need to be addressed, bring them to the attention of state and federal regulators and policymakers, advocate for change, and report back to the community. Beyond helping individuals, information collected through this project will ultimately serve the entire HIV community, as it will help educate state and federal officials as they review and refine key aspects of the Affordable Care Act in coming years.

Partners working on this project
SpeakUP is a partnership led by AIDS Foundation of Chicago and the Center for Health Law and Policy Innovation at Harvard Law School. Key national partners are the AIDS Institute, AIDS United, HIV Medicine Association, National Alliance of State and Territorial AIDS Directors, and Project Inform. Initial funding was provided by the MAC AIDS Fund.
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Report an issue

Please complete the form below:

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  • If you are reporting for yourself:

    Please tell us your name, email address, phone number, and as much information as is needed to provide a full description of the problem. We need to know what state you live in, the insurance company or Medicaid health plan you are a member of, provider name, medication names, and so on. The more detail the better. Don’t forget your contact info so we can follow up if we have questions.

    If you are a health or social service provider reporting on behalf of clients:

    DO NOT SEND PROTECTED HEALTH INFORMATION ABOUT YOUR CLIENT, including client name, date of birth, or any other identifying information. Instead, if you would like for us to follow up with you, please provide your professional contact information below. If we need additional information, we will follow up with you.”

Resources

Click a state below to see 2017 ACA Marketplace plan assessment and other available state resources.
Click here to view 2016 plan assessments.



National resources >

Alabama

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Alaska

See below for a collection of  HIV and HCV resources for this state.

Arizona

There are currently no resource available for this state. Check out our national resources page for general information.

 

Arkansas

There are currently no resource available for this state. Check out our national resources page for general information.

 

California

See below for a collection of  HIV and HCV resources for this state.

Colorado

See below for a collection of  HIV and HCV resources for this state.

Connecticut

See below for a collection of  HIV and HCV resources for this state.

Delaware

There are currently no resource available for this state. Check out our national resources page for general information.

 

Georgia

See below for a collection of  HIV and HCV resources for this state.

 

Hawaii

There are currently no resource available for this state. Check out our national resources page for general information.

 

Idaho

There are currently no resource available for this state. Check out our national resources page for general information.

Illinois

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Click here to download the PrEP plan assessment.

Indiana

There are currently no resource available for this state. Check out our national resources page for general information.

 

Iowa

There are currently no resource available for this state. Check out our national resources page for general information.

Kansas

There are currently no resource available for this state. Check out our national resources page for general information.

 

Kentucky

See below for a collection of  HIV and HCV resources for this state.

Louisiana

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Maine

There are currently no resource available for this state. Check out our national resources page for general information.

 

Maryland

See below for a collection of  HIV and HCV resources for this state.

Michigan

See below for a collection of  HIV and HCV resources for this state.

 

Minnesota

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Mississippi

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Missouri

There are currently no resource available for this state. Check out our national resources page for general information.

 

Montana

There are currently no resource available for this state. Check out our national resources page for general information.

Nebraska

There are currently no resource available for this state. Check out our national resources page for general information.

 

Nevada

There are currently no resource available for this state. Check out our national resources page for general information.

New Hampshire

There are currently no resource available for this state. Check out our national resources page for general information.

 

New Jersey

There are currently no resource available for this state. Check out our national resources page for general information.

 

New Mexico

There are currently no resource available for this state. Check out our national resources page for general information.

 

North Carolina

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

North Dakota

There are currently no resource available for this state. Check out our national resources page for general information.

 

Ohio

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Oklahoma

There are currently no resource available for this state. Check out our national resources page for general information.

 

Oregon

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Pennsylvania

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Rhode Island

See below for a collection of  HIV and HCV resources for this state.

South Carolina

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

South Dakota

There are currently no resource available for this state. Check out our national resources page for general information.

 

Tennessee

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Texas

See below for a collection of  HIV and HCV resources for this state.

The plan assessment helps individuals living with HIV and/or HCV determine which Marketplace Silver plans best serves their needs.

Click here to download the plan assessment.

Utah

There are currently no resource available for this state. Check out our national resources page for general information.

 

Vermont

There are currently no resource available for this state. Check out our national resources page for general information.

 

Virginia

See below for a collection of  HIV and HCV resources for this state.

Washington

There are currently no resource available for this state. Check out our national resources page for general information.

 

West Virginia

There are currently no resource available for this state. Check out our national resources page for general information.

 

Wisconsin

See below for a collection of  HIV and HCV resources for this state.

 

Wyoming

There are currently no resource available for this state. Check out our national resources page for general information.

 

ACA 101

The Patient Protection and Affordable Care Act, commonly called the Affordable Care Act (ACA) or, colloquially, Obamacare, is a United States federal statute signed into law by President Barack Obama on March 23, 2010. Together with the Health Care and Education Reconciliation Act amendment, it represents the most significant regulatory overhaul of the U.S. healthcare system since the passage of Medicare and Medicaid in 1965. Under the act, hospitals and primary physicians would transform their practices financially, technologically, and clinically to drive better health outcomes, lower costs, and improve their methods of distribution and accessibility.

The ACA was enacted to increase the quality and affordability of health insurance, lower the uninsured rate by expanding public and private insurance coverage, and reduce the costs of healthcare for individuals and the government. It introduced mechanisms like mandates, subsidies, and insurance exchanges. The law requires insurance companies to cover all applicants within new minimum standards and offer the same rates regardless of pre-existing conditions.

For more information on the ACA and the health care marketplace, visit HealthCare.gov.

FAQs

Find answers below to common questions about the SpeakUP project and reporting an issue.

What can I get help with?

One part of our work is to collect, catalog and analyze problems so we can improve access to health care. The other part of our project is to help individuals and service providers by answering questions, providing information on the appeals process, generally troubleshooting, and suggesting next steps. In many cases, we may suggest that you get help from someone at the local level.

Who can report a problem?

We encourage anyone living with HIV to report problems they are having accessing care. We also urge anyone who helps people with HIV to report problems on behalf of their clients. That includes planning council members, peers, health care clinic staff or health care provides, case managers, social service providers, navigators, health department officials, and anyone else who has information to share.

What kinds of problems should I report to you?

We want to hear about problems you are having accessing health care, such as getting prescription drugs, primary care, or access to specialists.Some examples are listed below:

Can you afford the care you need? Is your state’s AIDS Drug Assistance Program helping? We also want to hear about success stories, so send them too!

What are the limits of the help we can provide?

While some of us working on the project are lawyers, we are not licensed in every state. Any resources we can provide do not constitute legal advice.

What if I have more questions?

We are here to help you! Please send us an email at speakup@aidschicago.org if you have additional questions and we will do our best to get back to you in a timely manner.

What information should I tell you?

Please tell us your name, email address, phone number, and as much information as is needed to provide a full description of the problem. We need to know what state you live in, the insurance company or Medicaid health plan you are a member of, provider name, medication names, and so on. The more detail the better. Don’t forget your contact info so we can follow up if we have questions.

What should I NOT tell you?

We are not using secure servers, so don’t send us any protected health or other personally identifiable information such as social security number, health status (including HIV status), date of birth, and so on. You also don’t have to provide information such as a name, email or phone number. But, if it would be okay for us to follow up with you to learn more, please include an email address or other means of getting in touch with you.